When Albie was born, his mom, Charlotte, said that he was “absolutely fine. Everything was fine for about two weeks.”
As a father of two young children, Donnan recalls being afraid of what the future would hold prior to his diagnosis.
Married with a newborn son, Ruthie was scared to learn that PNH was a life-threatening illness that at the time had no approved treatment.
At only three months old, Evie's parents were told that her case was severe and that there were no approved or effective treatment options.
Tristan's parents experienced a whir...Read more